Uloga pacijenata i udruženja pacijenata u dostupnosti inovativnih ljekova - Tanja Španić
Tanja Španić
Perspektiva pacijenata je jedna od najvažnijih stvari u medicini generalno. Glas pacijenata je jasan a naša je dužnost da poslušamo taj glas.
Professional patient advocate and currently the president of Europa Donna Slovenia and president of European coalition Europa Donna. She was diagnosed with breast cancer at the age of 26. A year after her diagnosis, she joined Europa Donna Slovenia. Since then, she is an active member and a breast cancer advocate nationally and internationally.
Since 2010 until 2014, she was the head of young breast cancer patients group of ED Slovenia. At the time, this group was one of the few in Europe. In March 2014, she became the secretary general of Europa Donna Slovenia, and in April 2017 its president. Her work is focused on national as well as international advocacy for breast cancer patients. In 2010, she participated in her first advocacy training in Milano and since then she has actively participated in several international meetings and workshops.
In 2018 she became a member of Executive board of European coalition Europa Donna and in April 2020 its president. She has a professional background in veterinary medicine, and she has a PhD in molecular and behavioural neuroscience.
Since 2010 until 2014, she was the head of young breast cancer patients group of ED Slovenia. At the time, this group was one of the few in Europe. In March 2014, she became the secretary general of Europa Donna Slovenia, and in April 2017 its president. Her work is focused on national as well as international advocacy for breast cancer patients. In 2010, she participated in her first advocacy training in Milano and since then she has actively participated in several international meetings and workshops.
In 2018 she became a member of Executive board of European coalition Europa Donna and in April 2020 its president. She has a professional background in veterinary medicine, and she has a PhD in molecular and behavioural neuroscience.